Jesy Nelson Shares Her Concerns About Her Twin Daughters’ Walking Challenges Due to a Rare Disorder
Jesy Nelson Shares Heartbreaking Update About Her Twin Daughters
Jesy Nelson has revealed a poignant health update concerning her twin daughters, Ocean Jade and Story Monroe, through a recent social media post. On January 4, the former Little Mix member disclosed that her eight-month-old girls have been diagnosed with Spinal Muscular Atrophy (SMA) Type 1, a rare genetic condition.
Nelson, 34, shared her emotional journey in an Instagram video, where she broke down while explaining the diagnosis. “We were told that they’re probably never going to be able to walk,” she said, adding, “They probably will never regain their neck strength, so they will be disabled. And so the best thing we can do right now is to get them treatment, and then just hope for the best.”
The singer expressed gratitude for the treatment the twins have received, emphasizing its critical importance. “Thankfully, the girls have had their treatment, which I’m so grateful for because if they don’t have it, they will die,” she stated.
Nelson described the challenges she has faced since the diagnosis, noting the additional responsibilities that come with caring for her daughters. “I feel like I’ve had to become like a nurse for the twins,” she said, mentioning the need for supportive medical equipment.
Support has poured in for the singer, including a heartfelt message from JoJo Siwa, who commented, “Sending lots of love and prayers,” accompanied by red heart emojis.
SMA is an inherited neuromuscular disorder that leads to muscle weakness and atrophy. According to the Cleveland Clinic, SMA Type 1 accounts for about 60% of cases, with symptoms typically appearing within the first six months of life. Although there is no cure, various therapies and medications can assist in managing symptoms.
Nelson and her fiancé, Zion Foster, welcomed the identical twins on May 15, 2025, after a premature birth at 31 weeks due to complications related to their shared placenta.
In her video, Nelson emphasized her desire to raise awareness for SMA, sharing critical symptoms that parents should look for. “I think that I can raise as much awareness about this as possible, and if something good can come out of this,” she said. She mentioned symptoms like difficulty holding oneself upright, a "frog-like" leg position, and rapid breathing patterns.
“Please take your child to the doctor, to the hospital, because time is of the essence, and your child will need treatment. The quicker you get this, the better their life will be,” she urged.
For Nelson’s complete update, her Instagram post is available for viewing.
